The Myositis Moon Walk:
Myositis Awareness One Small Step at a Time
The Myositis Moon Walk, a collaboration between Myositis Support and Understanding (MSU) and the Myositis Moon Walk team, aims to raise awareness and education about Myositis, a rare autoimmune disease which can cause muscle weakness, inflammation, pain, and fatigue. Myositis affects people of all ages, mimicking other illnesses, making diagnosis challenging.
Join patients, caregivers, families, and friends on May 4th, 2024, at the U.S. Space and Rocket Center in Huntsville, AL or the Myositis Moon Walk.
Patients and caregivers need emotional support, financial aid, and understanding. Fundraising is vital to advance research, develop effective treatments, and ultimately find a cure. The Myositis Moon Walk promotes education and support for patients, caregivers, and healthcare providers.
Join Us Today: Every Step Counts!
Community Support Starts Here
Join our Myositis Moon Walk Fundraiser Today!
Meet the Organizers
Meet Stephen and Shaylee Moore, Benita Moyers, and Mollie and Jessica Preston. This small group of Myositis patients and caregivers wanted to gather Myositis patients across Alabama together for an awareness walk. This led to the idea to start the first ever Myositis Moon Walk.
Learn more about the organizers of this event on the About Us page.
Register for the Event
Registration is Limited
If you need to cancel, please email Benita Moyers at benita@understandingmyositis.org as soon as possible so someone else can fill that spot.
If you missed the deadline, you can still participate in the walk by purchasing a ticket at the entrance to the U.S. Space & Rocket Center.
NOTE...If you are a myositis patient, please contact Benita Moyers at benita@understandingmyositis.org instead of filling out this form.
For ticket prices and more information visit https://www.rocketcenter.com/admission
Lunch will be available for purchase at the Mars Grill.
Thank you!
If you have difficulty opening the link above you can complete the form here.
In loving Memory of Alicia M. Perez-Yeary
November 6, 1964 - May 26, 2023
Myositis Moon Walk honors the memory of Alica M. Perez-Yeary.
Alicia was a beloved member of our support groups. She was diagnosed with Polymyositis in the fall of 2013. She visited UAB every 3 to 6 months depending on how her disease was progressing at the time. Alicia and her husband Gary were fortunate that they were able to work together and travel the U.S. during her illness. In the fall of 2018, her Polymyositis had caused her heart to enlarge and created a problem with one of her valves. She was denied surgery to replace the valve, surgery for a LVAD (left ventricle assist device), and a heart transplant twice. At that time, she was given one year to live.
They were fortunate that Gary was able to take time off work to spend that year with her. Gary says, "Through the grace of God, she survived for 4 1/2 years after her initial diagnosis. They enjoyed traveling to the Caribbean and parts of Europe." Gary is glad they were able to make her last years enjoyable.
Gary and Alicia were very grateful that they were able to meet other patients, caregivers, and medical personnel during her illness. The Strength Through Knowledge Alabama Myositis group provided friendship, support, and laughter. They also led Alicia and Gary to the support groups at Myositis Support and Understanding - MSU even more support and friendship.
Gary says, "Without the help of these two groups, this would have been a long and lonely journey. Myositis is an awful diagnosis, but with the help of these groups, we were able to gain wisdom about daily life with the disease, what to expect, and what the progression may be for her. I love you all for your kindness and help."
The Myositis Moon Walk team and MSU appreciates the generous donation made to help other Myositis patients around the world. Please join Gary and our group as we walk in Alicia's memory on May 4th and spread Myositis Awareness One Small Step at a Time.
Thank you to our Sponsors!
The TNT Group is a dynamic team of experienced real estate agents who specialize in helping clients buy and sell properties in Tennessee and Alabama. With a proven track record of selling hundreds of homes over the last few years, our team has the expertise, knowledge, and skills to guide you through every step of the real estate process. Whether you're a first-time homebuyer or a seasoned investor, we are committed to providing you with exceptional service and ensuring that your real estate goals are met. With our extensive experience and unwavering dedication to our clients, you can trust The TNT Group to deliver results and exceed your expectations.
VideoRequest is the ultimate video software solution infused with cutting-edge AI enhancements. With VideoRequest, creating, editing and sharing videos has never been easier!
The Myositis Moon Walk Team uses VideoRequest to make our Myositis Moon Walk News Network videos. Thank you VideoRequest!
Thank you to our Donors and Supporters!
Tiffani Hortman began TifferJoe Photography in 2010 and has continued ever since! Tiffani's family has been impacted by Juvenile Myositis. We are grateful to have Tiffani, her family, and TifferJoe Photography join us for the walk!
We are the official travel blog for Lake Martin, Alabama! Go on exciting adventures all across Alabama, explore myths and urban legends, and experience unique destinations and attractions throughout the South East and Lake Martin area.
Hannah Moyers' life has been directly impacted by Myositis. Her mother was diagnosed with MDA5 Dermatomyositis in December 2020. She has donated goody bags for the children. Thank you Hannah for supporting the Myositis Moon Walk!
Hannah is licensed in Alabama and Tennessee.
Prevailing Winds was established in 2005 and is a diverse group of musicians brought together by our love of the flute! Currently we have five octaves of flutes ranging from piccolo to contra bass flute. We are always glad to have new members. Find out more about us and about our upcoming performances on Facebook by searching for Prevailing Winds Flute Ensemble.
Wishing you success with your event! Thank you for including us!
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