Mark Your calendars for May 2 & 3, 2025
Mark Your calendars for May 2 & 3, 2025
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It's Countdown to Launch! T-Minus 8 days until the Moon Walk!
It's Countdown to Launch! T-Minus 8 days until the Moon Walk!
If you are attending the Patient Voice Workshop, you should have received an email asking you to complete a form to choose your lunch. Please complete those NO LATER than Monday, April 28th to make your choice. After than, all choices will be chicken. https://forms.gle/TZQVqK7SBdnSFWf47
If you are traveling from out of town, be sure to download our signs and share your departure photos with us on social media using #myositismoonwalk. You can also send your photos to info@myositismoonwalk.org and we will feature some on our Facebook page and this website.
Moon Walk Travel Signs.pdf
The Myositis Moon Walk, a collaboration between Myositis Support and Understanding (MSU) and the Myositis Moon Walk team, aims to raise awareness and education about Myositis, a rare autoimmune disease which can cause muscle weakness, inflammation, pain, and fatigue. Myositis affects people of all ages, mimicking other illnesses, making diagnosis challenging.
The Myositis Moon Walk is more than just a walk; it's a journey of hope, healing, and human connection. Together, we illuminate the challenges of Myositis, foster enduring friendships, and discover the extraordinary power of the human spirit.
Join patients, caregivers, families, and friends on May 3rd, 2025, at the U.S. Space and Rocket Center in Huntsville, AL for the Myositis Moon Walk.
Every Step Counts!
Meet our Sponsors
Meet our Sponsors
The Myositis Moon Walk is fueled by the generosity of our sponsors.
Please take a moment to show your thanks by clicking on their names below
and visit their websites to learn more about them.
Presenting Level Sponsors
Presenting Level Sponsors
Thanks to our presenting level sponsors are critical to the Myositis Moon Walk Team Mission by providing The Patient Voice Workshop and The Myositis Moon Walk to our Myositis community at no charge.
Abcuro is developing its lead product candidate ABC008 for autoimmune disorders and rare cancers, including inclusion body myositis (IBM), T Cell Large Granular Lymphocytic Leukemia (T-LGLL) and T and NK cell lymphomas. ABC008 is a monoclonal antibody designed to selectively deplete highly cytotoxic T cells by targeting killer cell lectin-like receptor G1 (KLRG1), a marker selectively expressed on these highly cytotoxic T cells.
Each day at argenx, we are motivated to pursue a better tomorrow alongside patients. We aim to do this through partnership because we know that "together we are better". As your ally, we pioneer innovations to advance the understanding of rare diseases; we want to deliver immunology treatments to patients worldwide.
We listen to patients, supporters and advocacy communities; we hear your stories and share your determination.
We integrate your aspirations into how we innovate, how we conduct research and design trials, and how we can support you in the daily struggles you face living with a rare disease.
Dermatomyositis.com
Dermatomyositis.com
Dermatomyositis.com was recently launched for patients with Dermatomyositis. Please take a moment to visit their website and learn from patients' stories. Learn more about this sponsor HERE.
Dermatomyositis.com is looking for a few Dermatomyositis patients to share their stories on Thursday, May 1 prior to the event. If you would be interested in sharing your story during a video interview, please email Benita Moyers at benita@understandingmyositis.org for more information. The deadline to sign up is April 15th.
Your IV Solutions RX Care Team has experienced and dedicated healthcare professionals trained in the various disease states to better service you. We focus on meeting the needs of your family and caregivers, adhering to the highest safety standards, and working with your medical team for the best outcomes.
A clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for autoimmune diseases.
At EMD Serono, the healthcare business of Merck KGaA, Darmstadt, Germany in the U.S., we aspire to create, improve and prolong life for people living with difficult-to-treat conditions.
We’re a nationwide specialty pharmacy, founded by pharmacists and dedicated to providing services for patients with chronic and rare illnesses that require complex care. We are invested in improving the health, and the lives, of the people we serve by offering expert clinicians, passionate advocates, committed healthcare partners, and strategic reimbursement experts. Our goal is to optimize patient outcomes while treating patients as if they were members of our family.
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